The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life (3rd Edition)

Book Description

Updated with the newest information on Alzheimer's Disease and dementia, this bestselling book has remained the "bible" for families who are giving care toafflicted loved ones.

Download Description

Updated with the newest information on Alzheimer's Disease and dementia, this bestselling book has remained the "bible" for families who are giving care toafflicted loved ones.

Customer Reviews:

A MUST read for anyone caring for an Alzheimers patient.......2007-10-02

This is the best book I have read regarding living with and caring for a loved one with Alzheimer's disease.

So very helpful.

The 36-Hour Day Book.......2007-06-10

I had this book when my mother had Alzheimers. I bought this for a friend whose wife has Alzheimers. It is concise, supportive with lots of information at a reasonable price.

Everything I needed to know.......2007-05-22

A wonderful book that has reinforced my observations and been enlightening about areas that I was struggling with. It is clearly and articulately written, and easy to read as well. I throughly and heartily recommend it.

Caregivers' BEST resource.......2007-05-14

There is a gold standard in Alzheimer's caregiving resources, and "The 36-Hour Day" is it! This book is as easy to understand as it is comprehensive. In the 20 years I've been helping people care for persons with memory disorders, I have referred more families/caregivers to purchase this book than any other. It is overwhelmingly complete. This is not a book you want to read cover-to-cover. Rather, you put it in your nightstand, and as issues arise, find some simple-to-implement tips and suggestions. Best of all, you learn that what you've experienced with your family member is "normal" for this condition. When caring for someone with a progressive memory disorder, there are so many myths and half-truths out there. As it continues to be updated by the expert authors, this trusted resource has been recommended by clincians for more than 2 decades.

Still Great. A Must Read.......2007-04-29

I am an elder law attorney who helps clients who are going through the process of Alzheimer's disease. I often give this book out to my clients who just don't seem to know what to do next. When faced with this devistating disease process you cannot hope to know what is coming or how to even begin to deal with it all. This book helps...alot. In my opinion this book should be mandatory reading. I give it 5 stars and strongly encourage you to get this book.

The 36-Hour Day, 4th edition: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life (A Johns Hopkins Press Health Book)

Average customer rating:

Everyone Should Read
An absolute must for caregivers
The 36 Hour Day
The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life
A MUST read for anyone that has an alzheimer family member, or anyone involved in the care of an alzheimer patient!!!!!!

The 36-Hour Day, 4th edition: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life (A Johns Hopkins Press Health Book)
Nancy L. Mace , and Peter V. Rabins
Manufacturer: The Johns Hopkins University Press
ProductGroup: Book
Binding: Paperback

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ASIN: 0801885108

Book Description

Revised in 2006 for its twenty-fifth anniversary, this best-selling book is the "bible" for families caring for people with Alzheimer disease, offering comfort and support to millions worldwide. In addition to the practical and compassionate guidance that have made The 36-Hour Day invaluable to caregivers, the fourth edition is the only edition currently available that includes new information on medical research and the delivery of care.

The new edition includes:

-new information on diagnostic evaluation-resources for families and adult children who care for people with dementia-updated legal and financial information-the latest information on nursing homes and other communal living arrangements-new information on research, medications, and the biological causes and effects of dementia

Also available in a large print edition

Praise for The 36-Hour Day:

Customer Reviews:

Everyone Should Read.......2007-10-04

I am so sorry that I did not read this book 5 years ago. It explained why my mom behaves the way that she does. I think that everyone needs to read this because there is not a person alive that does not or will not love someone who has dementia or Alzheimers. It gives medical information that is easy to understand as well as ways to best deal with their loved one. It reassures the caregiver that they need to take care of themselves and it helps them to realize that thier loved one still loves them but is sometimes unable to show it in acceptable ways.

An absolute must for caregivers.......2007-07-27

For those of us who are caregivers, this book is a lifesaver. Before reading this book I was certain that many of the behaviors that my family member exhibits were unique to her. While I often read about Alzheimer's, I never read anything that made me stop and realize that, first, I am not alone, and second, that there are ways that I can handle situations better. This book is full of great suggestions on how to deal with the many behavioral issues that are exhibited by those with Alzheimer's and dementia.

Whenever I have an especially difficult day, I go online to the Alzheimer's page and remind myself how difficult it is for my family member. This book drove home that message, yet more importantly provided me with some tools on how to deal with these issues. I cannot stress enough how much I thought our situation and the behaviors were unique; it is liberating to realize that they are not. As well, understanding why the person exhibits such behaviors makes it much easier to respond correctly.

I wish I could thank the authors personally for this book. I hope they both know that their wisdom, concern and awareness of the Alzheimer patient has made a difference for me, and I am certain has made a difference for many others.

Caregivers -- buy this book, you will find some stress greatly diminished.

The 36 Hour Day.......2007-07-16

The 36-Hour Day is an excellent book for anyone dealing with Alzheimer's patients. It is hard for me to imagine anyone with the disease reading the book, but family members will benefit tremendously.

The 36-Hour Day: A Family Guide to Caring for People with Alzheimer Disease, Other Dementias, and Memory Loss in Later Life.......2007-07-01

Well-written, easy to read, and comprehansive..excellent resource! I have already recommended it to others facing a future as a caregiver.

A MUST read for anyone that has an alzheimer family member, or anyone involved in the care of an alzheimer patient!!!!!!.......2007-06-11

I can not stress enough just how helpful and informative this book is. My Dad was diagnosed with Alzheimer Disease 6 years ago. In those 6 years we have seen numerous doctors, taken numerous tests, spoke to many Social Workers, Home Health Aides, etc. NO ONE gave me the advice, information, suggestions, help, etc., anywhere near as well and thorough as "The 36 Hour Day".
I think so highly of this book and recommend it so much; that just last week, I had a meeting with the Director of Nursing, Head Nurse, and Social Worker at the nursing home where my Dad resides. I highly recommended this book and told the Dir. Of Nursing, it should be mandatory reading for anyone working in the facility.
If you have a loved one or are a care taker of someone with Alzheimer Disease---RUN do not walk, to your nearest bookstore and pick up a copy of this book.

Average customer rating:

Kudos To One Brave Man
Alzheimer's from the Inside Out
A must for anyone facing the challenge of Alzheimer's
awakens the heart and mind
Stunning...

Alzheimer's from the Inside Out
Richard Taylor
Manufacturer: Health Professions Press
ProductGroup: Book
Binding: Paperback

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ASIN: 1932529233

Book Description

Receiving a diagnosis of Alzheimer's disease profoundly alters lives and creates endless uncertainty about the future. How does a person cope with such a life-changing discovery? What are the hopes and fears of someone living with this disease? How does he want to be treated? How does he feel as the disease alters his brain, his relationships, and ultimately himself?

Richard Taylor provides illuminating responses to these and many other questions in this collection of provocative essays. Diagnosed with Alzheimer's disease at age 61, the former psychologist courageously shares an account of his slow transformation and deterioration and the growing division between his world and the world of others.

With poignant clarity, candor, and even occasional humor, more than 80 brief essays address difficult issues faced by those with Alzheimer's disease, including
• the loss of independence and personhood
• unwanted personality shifts
• communication difficulties
• changes in relationships with loved ones and friends
• the declining ability to perform familiar tasks

This rare, insightful exploration into the world of individuals with Alzheimer's disease is a captivating read for anyone affected personally or professionally by the devastating disease. Individuals with early-stage Alzheimer's disease will take comfort in the voice of a fellow traveler experiencing similar challenges, frustrations, and triumphs. Family and professional caregivers will be enlightened by Taylor's revealing words, gaining a better understanding of an unfathomable world and how best to care for someone living in it.

Customer Reviews:

Kudos To One Brave Man.......2007-09-28

What a great book! Alzheimer's, one of the cruelest of afflictions, touches so many families. This book is a must read for all to understand what it means to live through the progress of Alzheimer's. Mr. Taylor takes a positive attitude towards this problem, and shares with all of us on the progress of Alzheimer's. I'm sure most people would just give up and get depressed - but, not Mr. Taylor. He continues to live life to the fullest, and, shares his experiences in a most professional way. My admiration for him has no bounds. My best wishes go to this brave man.

Alzheimer's from the Inside Out.......2007-08-31

This book gives a unique perspective on the feelings of the person with Alzheimer's disease. Examining how it feels to be ignored by family and doctor's as if they are not in the room as they are discussed. It is a good book for families and other caregivers to read as it can help them understand some of the behaviors that the person with Alzheimer's disease exhibit, especially fear, anger, outrage, embarrassment, etc., often they cannot explain these reactions in words and thus act out their feelings. This book helps the caregiver understand this better and helps them to see that a change in their behavior might improve their loved one's behavior.

A must for anyone facing the challenge of Alzheimer's .......2007-05-27

Whether you are a care giver or have been diagnosed with Alzheimer's this book will enrich your knowledge. Richard Taylor has the insight of personal experienc. He also has the gift of being able to convey that experience with passion, honesty and grit.

awakens the heart and mind.......2007-05-15

This book is a wonderful insight to the affects of Alzheimer's from a patient's perspective. It is a reminder of why we must continue to be patient, loving and understanding when dealing with anyone with the disease.
This is a book I will share and recommend to others.

Stunning..........2007-03-13

Alzheimer's from the Inside Out is a stunning achievement. In this collection of essays, Richard Taylor gets at the essence of dementia, and how it has redefined his relationships with family, friends and even with himself.

There are no answers when it comes to Alzheimer's, but Richard asks all the right questions. Alzheimer's from the Inside Out is much more than a resource for anyone dealing with the disease. Although the book includes plenty of practical information, Richard goes beyond test scores, standard medications and neuroimaging to the more important philosophical and psychological aspects of life after diagnosis. He takes the focus off the disease, and puts it back on the person.

I wish I'd read this book when my father were alive. I would have worried less about what was wrong with him and worried more about just being with him.

Average customer rating:

Beyond the front cover...
A good addition to a collection of Alzheimer's books
Good information
Don't judge a book by its cover...
Title of this book

Alzheimer's for Dummies
Patricia B. Smith , Mary M. Kenan , and Mark Edwin, M. D., M. P. H. Kunik
Manufacturer: For Dummies
ProductGroup: Book
Binding: Paperback

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ASIN: 0764538993

Book Description

An estimated 4 million people are living with Alzheimer’s Disease (AD) in America today, with approximately 370,000 new cases diagnosed every year. AD patients live anywhere from 5 to 20 years after their diagnosis; and their inability to care for themselves grows more dramatic as the disease progresses, creating profound implications for their families and healthcare providers. Its impact on families during the caregiving years is overwhelming.

If you have a family member or close friend who’s suffering from Alzheimer’s Disease and you’re looking for current, useful information, then Alzheimer’s For Dummies is for you. This reference guide also is helpful if you

Need to know more about its diagnosis and treatment
Want to take care of yourself while taking care of your loved one
Are not the primary caregiver but want to know how to help
Want to know how Alzheimer’s Disease is going to affect you and your loved one

Alzheimer’s For Dummies takes a realistic look at Alzheimer’s Disease, what it is and what it isn’t. It offers pertinent, easy-to-understand advice for dealing with the myriad concerns and responsibilities that a primary caregiver must assume when managing an Alzheimer’s patient. Here’s a sampling of the information you’ll find in this valuable guide:

Maneuvering through medical, legal, and financial tangles
Distinguishing AD from other brain diseases and medical conditions
Handling the fears that may accompany the diagnosis
Evaluating current drug therapies; watching out for scams and quack treatments
Finding the best doctors; dealing with attorneys and CPAs
Looking at Medicare regulations
Evaluating the cost of care
The current state of research, diagnosis, and treatment

Television personality Leeza Gibbons, whose mother was stricken with AD, writes in the foreword of this book, “There is no upside to keeping your head in the sand. This book is a crucial step in your new fight. Arm yourself with the knowledge waiting for you in these pages. It will help you find answers and resources as you adjust to your new reality.”

Customer Reviews:

Beyond the front cover..........2004-06-29

...lies a pleathora of easily accessible and directly useful information for the AD caregiver. What is not contained on the pages is supplied by weblinks and addresses for helpful groups and associations. The best advice often comes from those who have walked the walk and the author here is no exception. Kudos to the author for her bravery and much gratefulness for the gift to us all from the author and her mother.

A good addition to a collection of Alzheimer's books.......2003-12-18

Alzheimer's for Dummies does a good job in presenting the information relating to care giving and decision making for families of Alzheimer's patients.

During my mother's bout with Alzheimer's, I looked for resources that would give me clear understanding and answers of what was happening now and what was going to happen down the road. This book is one of several that I have on the subject. It does not make light of the disease or the issues being faced, but does present good information in a way that is understandable and clear.

Good information.......2003-12-18

As an adult child of an Alzheimer's patient searching for as much information as I can about Alzheimer's disease, I find most books to have very little of the humor I desperately need to find to help me cope as the disease progresses. As a person who is living through the progressive loss of a loved one to this disease, I don't find this book to be insensitive or belittling, but refreshing and honest. I have shared this book with other family members and we have all found it helpful.

Don't judge a book by its cover..........2003-12-15

I am the author of this book. I lost my beloved mother and my aunt and another relative to Alzheimer's, so in addition to being an experienced medical writer, I have had heart-wrenching personal experience with this devastating disease.

I argued about the title when I was asked to write this book, but eventually the folks at Wiley convinced me that since the Dummies brand is so ubiquitous that people would understand and not take offense. And yet you have taken offense without reading a single word of the book, or knowing anything about the year of research and interviewing I put in to make the book the very best it could be and the easiest to understand.

During the writing of this book, I also had to confront all my own buried sorrows and heartbreak about my mother's illness and death, so the entire process was fairly torturous. Yet, I persevered because I believed in the book and hoped it could serve to spread the message about the importance of early intervention and appropriate use of medication for people with AD.

The Alzheimer's Association is absolutely wonderful and they do an incredible job; we are blessed with a terrific branch staffed with warm and caring people here in Houston. But not every city or town in America is fortunate enough to have a branch nearby; I wrote this book to help people who don't have ready access to support services and who are struggling with medical, legal and finacial issues as well as the emotional problems and family strain that caring for an Alzheimer's patient can bring.

If you had read the book and then said you didn't like it would be one thing. But to judge a book by its cover not only brings the old cliche roaring to vibrant new life but also denigrates the love, care, research and hard work that all three authors put into this book.

Patricia B. Smith

Title of this book.......2003-12-09

This book may have excellent and easy-to-understand contents about Alzheimer's. However, the title is somewhat belittling and insensitive to the patient and to the family. Yes, having worked with Alzheimer patients and families, I would say so. I would NOT recommend this book to them. Perhaps to the general public is okay......but then, should they not also go to Alzheimer's Association (www.alz.org) and their local chapters throughout the country for general information and resources??

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The Neuropathology of Dementia

Manufacturer: Cambridge University Press
ProductGroup: Book
Binding: Hardcover

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ASIN: 0521819156

Book Description

Completely rewritten and updated, this new edition is almost twice the size of its predecessor. It presents practical guidance to pathologists, describes the contribution of neuroimaging to diagnosis, and surveys the clinical features of dementia. New material includes three chapters on neuroimaging, molecular diagnostics, and transgenic models; two chapters on tauopathies under new authorship and a chapter under new authorship on synucleinopathies, including multiple system atrophy. First Edition Hb(1997): 0-521-43311-8

What If It's Not Alzheimer's: A Caregiver's Guide to Dementia

Average customer rating:

Great resource
Dementia other than Alzheimer's
One of my "Must" readings for caregivers
Great Resource
An updated handbook packed from cover to cover with tips

What If It's Not Alzheimer's: A Caregiver's Guide to Dementia

Manufacturer: Prometheus Books
ProductGroup: Book
Binding: Paperback

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philosophy hope in a jar daily moisturizer

ASIN: 1591020875

Book Description

Not all that long ago, dementia, or a deterioration of mental ability, was considered a natural part of aging, but with increased knowledge of Alzheimer's disease and improved diagnostic capabilities, any time an older individual misplaces car keys or forgets an appointment, family members are quick to conclude that their loved one is in the throes of Alzheimer's. Although today the public all too often associates dementia symptoms with Alzheimer's disease, the medical profession can now distinguish various types of "other" dementias that also undermine cognitive abilities, often with onset at a younger age. WHAT IF IT'S NOT ALZHEIMER'S is the first comprehensive guide dealing with frontotemporal dementia (FTD), one of the largest groups of non-Alzheimer's dementias. The contributors to this book are either specialists in their fields or have exceptional hands-on experience with FTD sufferers.

Editors Lisa and Gary Radin divide their highly accessible reference work into four parts. Beginning with a discussion of the medical facts, part one defines and explores FTD as an illness distinct from Alzheimer's disease. Also considered are clinical and medical care issues and practices, as well as such topics as finding a medical team and rehabilitation interventions. The essays in part two focus on managing care and examine daily routines, including nutrition, exercise, socialization, adapting the home environment, and behavioral issues. Part three centers on caregiver resources, and the contributors identify professional and government assistance programs along with private resources and legal options. Finally, the chapters in part four stress the need for caregivers to take care of themselves as well as their loved ones with FTD.

This much-needed resource work, the first of its kind, provides a wealth of real and practical information to both healthcare professionals and caregivers of someone suffering from frontotemporal dementia.

Customer Reviews:

Great resource.......2007-05-13

I have found this book to be very helpful with alot of information regarding FTD.... It has been a great help

Dementia other than Alzheimer's.......2007-03-25

I wish I had found this book over a year ago. Statistically the largest portion of people diagnosed with dementia are diagnosed with Alzheimer's Disease. The sad truth is that many people diagnosed as having Alzheimer's are mis-diagnosed and don't have Alzheimer's but some other form of dementia. Dementia is not a disease itself but a symptom of something else going on. Just like pain is not a disease but caused by other things. Many things can and do cause dementia: brain tumors, metabolic conditons, trauma, fluid on the brain, nutritional issues, alzheimer's, frontotemporal lobe, lewy bodies and on.

This book talks about other causes of dementia besides Alzheimer's. It focuses more heavily on Frontotemporal Dementia or FTD. There is growing evidence that a large percentage of people diagnosed with Alzheimer's actually have had or do have FTD. This was the case with my mother. So what's the big deal? Both kinds of dementia are debilitating and have no cure right? Well the big deal is when someone has Alzheimer's they can give them medicine that helps maintain memory for about 12-18 longer than without the meds. With FTD if you give that person the Alzheimer's meds because of a mis-diagonosis it can cause severe behavior problems. There is nothing you can give for FTD. I personally witnessed this problem with my mother after being put on an anti-Alzheimer's med. She had to be taken off of it since it caused some severe psychotic behavior. Had I or the doctor at the time know more about FTD there would not have been a false diagnosis of Alzheimer's. Why? It really is not that hard to make a proper diagnosis of FTD if you know and the doctor know what to look for. FTD begins with behavior issues and then comes memory impairment where Alheimer's begins with memory impairment. Plus Alzheimer's tend to affect the Parietal and Temporal lobes of the brain first and FTD starts with the frontal and temporal lobes first. Over time however it is not easy to tell the difference. The best thing when in doubt is knowing the patients background and detailed history, neuropsych testing and a CT or MRI scan to look for where the shrinkage is taking place in the brain first.

Again this book is a great resource and help to anyone wanting more info on dementia and specifically if you wonder is it really Alzheimer's. It is the only book like it out there and it is not just fluff. It is also highly recommended by the Association of Frontotemporal Dementia out of the University of Pennsylvania in Philadelphia. All thumbs up on this one.

One of my "Must" readings for caregivers.......2006-04-16

"What If It's Not Alzheimer's" will help all caregivers to cope with the loss of their loved ones as cognitively sound individuals. Whether Alzheimer's, multi-infarct, Parkinson's, FTD, or any of the dozens of other dementias, the perpetual grief and mourning felt by the caregivers will be the same. Dementia is a disease that knows no boundaries. It is blind to the categories in which we usually place our fellow human beings. It can occur at the age of 55 or 85. It can happen to Blacks, Whites, Hispanics, Asians, Jews, Christians, Muslims, males and females, rich and poor. It has not spared ex-presidents. Tears are shed by husbands and wives, sons and daughters, brothers and sisters-in fact anyone responsible for the care of a loved one with dementia. I speak from personal experience. Dementia did not spare my mother whose 15 year journey into the opaque fog of multi-infarct dementia is told in my own recently published memoir. I recommend "What If It's Not Alzheimer's" to anyone whose loved one is experiencing this terrible disease.

Robert Tell, Author of "DEMENTIA DIARY, A Care Giver's Journal"

Great Resource.......2006-02-23

Knowing nothing about frontal lobe dementia, I found this a great resource in finding out what I can do to make my family member more comfortable, as well as exploring the resources available to me. Occasionally I got bogged down with the scientific reports, but overall it is a very accessible book.

An updated handbook packed from cover to cover with tips.......2004-03-05

While general public knows Alzheimer's best among the many dementias in existence, but Playing The Numbers is the first to address FTD, a specific group of dementias and one of the largest non-Alzheimer's groups. The resources and reference material comprising hat If It's Not Alzheimer's? provides the non-specialist general reader with an updated handbook packed with from cover to cover with tips and information for caregivers and sufferers alike.

Creating Moments of Joy for the Person with Alzheimer's or Dementia, 3rd. Ed.

Average customer rating:

A must for care-givers.
Wonderful book
Excellent for anyone touched by dementia

Creating Moments of Joy for the Person with Alzheimer's or Dementia, 3rd. Ed.
Jolene Brackey
Manufacturer: Purdue University Press
ProductGroup: Book
Binding: Paperback

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ASIN: 1557533660

Book Description

This book offers many ways to create moments of joy. No matter what the environment or situation is, this book will be a positive tool on a daily basis. This book breaks down the learning process into five sections. Within those five sections are smaller steps. At the end of each step is a place to journal thoughts, ideas, solutions and treasures. With this journal, many moments of joy will be created.

Customer Reviews:

A must for care-givers........2007-01-09

Purchased and used as training for our caregiver staff. Well done.

Wonderful book.......2006-08-10

By giving you an understanding of how the person with alzheimers views their world, this book helps the caregiver make life a little easier, happier, and more meaningful. It also reduces the stress and frustration of the caregiver because you gain knowledge of how to handle situations that before were a struggle.

Excellent for anyone touched by dementia.......2005-10-31

Jolene Brackey spoke at the nursing home where I work with patients with dementia. She is an incredible speaker and author. This book has so many wonderful ideas for nursing home workers and people who have loved ones with dementia. It is very reader-friendly and easy to understand. Jolene includes many real life examples to illustrate her ideas. She has a sense of humor and a sense of compassion that radiates with every chapter. I've used her ideas and had amazing success in my job. I recommend this book to anyone who wants to learn how to appreciate people with dementia.

Average customer rating:

Comprehensive!

Dementia: A Clinical Approach
Jeffrey L. Cummings
Manufacturer: Butterworth-Heinemann
ProductGroup: Book
Binding: Hardcover

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ASIN: 0409950440

Customer Reviews:

Comprehensive!.......2006-07-16

I simply love this book! As a practicing geriatic psychiatrist, it has provided me relevant clinical information and the latest research on the subject. With more than 600 pages, this book offers comprehensive discussion on assessment, diagnosis, medical and neurologic conditions (manifesting as dementia), and treatment intervention.

Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's

Average customer rating:

Living in the Labyrinth: A Personal Journey Through the Maze of Alzheiner's
Thanks!
Another exploration into ALZ by one who is there
A Must Read
A must-read for those caring for others with AD

Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's
Diana Mcgowin
Manufacturer: Delta
ProductGroup: Book
Binding: Paperback

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ASIN: 0385313187
Release Date: 1994-10-01

Book Description

Living In The Labyrinth is the story of how one woman found the strength and the courage to cope with a devastating disease that has afflicted five million Americans. Far from being an exercise in self-pity or a standard autobiography, this is an unflinching and ultimately uplifting look at a debilitating illness from the inside out.

Customer Reviews:

Living in the Labyrinth: A Personal Journey Through the Maze of Alzheiner's.......2007-06-13

This book was well done with frightening information about the dreadful disease of Alzheimer's. Unfortunately, the copyright is 1993 and I would love an update. There are new things that are helping with Alzheimer's every day. Every 72 seconds another person has been diganosed with Alzheimer's (according to Alzheimer's Desease Research)so we need more books like this that are more recent.

Thanks!.......2005-10-01

Thank you for your quick service and amazing availability. I have checked over half a dozen places for my new book and no one seems to carry it! I appreciate your speedy shipping as it comes in handy when I need something soon.

Another exploration into ALZ by one who is there.......2002-10-03

This is a magnificent addition to the small but growing oeuvre of those telling it like it is from within the shadow of Alzheimer's. Unlike Kuhn's "Alzheimer's Early Stages" who offers a Prozac to those of us who defy his Polyannish view of a CRS' mental functioning without seeking insights from those who remain lucid and analytical and rational within, despite our infrequent "windows of clarity", McGowan tells it like it is for some of us: warts, fistulae, et al. She does not hold back from her anger, depression and increased libido. [Discretely, I have observed that the female party in an ALZ pairing, whether caregiver or ALZer, seems to be affected by ALZ as if it were a female aphrodasiac, whereas the male is threatened by his partner's increased "horniness." Studies of sexual activities in aging environments seems to confirm this casual observation, which appears psychological rather than physiological, i.e. it seems not related to the physical phenomena of erectile dysfunction, or loss of vaginal lubrication, but rather a soritin reward for coping with the stress of ALZ.

McGowan's struggles with those who demanded that she surrender control over her completed opus are mirrored in our daily lives as our caregivers, facilitators, and M.S.W.'ers "command" that we
that we surrender our remaining identities since these are an obstacle for those who "know what is best for us;" and regard disobedience as defiance by ADHD juveniles.

McGowan's book could have used a considerate and conservative collaborator and/or editor to polish the rough diamond she has put forth, just as DeBaggio's "Losing My Mind" cries out for polishing, which refining Snyder's "Speaking Our Minds" exemplifies. But both McGowan and DeBaggio give us the raw data, from which we we middle stage ALZheimers desperately need so that we are not be alone nor terminally unique.

Interstingly, McGowan justifiably claims credit for instigating an Alzheimer support group, where none existed [there are an abundance of groups and "Idiot's Guides" for caregivers, but these tend, like Alanon, to be pity pots of anger and resentment directed at those of us with middle stage Rapid Onset "Late Onset" diagnoses, who have not yet deteriorated like Iris Murdoch into vocal or literary aphasia although the communicating becomes more difficult as the Ah!HA!s of insight flee much too rapidly. [I do not envison heaven for those who forget that one must recall spelling in order to use a dictionary or word processer!]

Like Strauss' "Speaking to Alzheimers", "Living in the Labyrinth" is an ideal guide of "Do's & Dont's for those who wish to communicate with us, without inflicting their own anger and resentment into us.

A "Must Read" for ALZers, Caregivers, Facilitators, and others who do not have Closed Minds regarding those of us who assure them that there is "A Human Thinking Within" the quickly closing walls of outward communication, acknowledgement, and recognition.

On the other hand, "cursed be those who have eyes and do not see, and ears which do not hear;" [Jeremiah & Ezekiel] vasecors et amens.

A Must Read.......2002-09-06

Living in the Labyrinth is one of the first books I read when I began researching Alzheimer's disease. It is a gripping account of Alzheimer's disease from the inside. I found myself reading the whole book in one sitting.

A must-read for those caring for others with AD.......2002-04-27

When I first began my zealous quest to understand the disease of Alzheimer's, I stumbled across this book. To this day, it remains the most influential book I've read for understanding stages 1-5. Written in first person, it provides a soul-revealing glimpse into the maze of AD as one woman shares her quest to deal with the loss of function and depression accompanying this stage of the journey. Years later, I still pick it up occassionally to reconnect.

Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend

Average customer rating:

Excellent!
Not relevant enough
Too much focus on what NOT to do
A how to "Talking to Alzheimer"guide
One of my "Must" readings for caregivers

Talking to Alzheimer's: Simple Ways to Connect When You Visit with a Family Member or Friend
Claudia J. Strauss
Manufacturer: New Harbinger Publications
ProductGroup: Book
Binding: Paperback

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ASIN: 1572242701

Amazon.com

Few books manage to balance practical suggestions and loving sympathy as well as Talking to Alzheimer's, a concise and comprehensive guide to communication with both paid caregivers and their patients. While the title suggests focus on a specific disease, the recommendations are appropriate for any family struggling with serious communication issues, whether those issues are the result of stroke, surgery, disease, or an accident.

Much of the book discusses methods of easing conversation during visits, as well as ways to manage the emotions that can surface in difficult times. From asking open-ended questions like, "How did your day go?" to gently reintroducing yourself to lifelong friends, the pointers here are written with kindness, and they focus on maintaining dignity for all involved. Short sections include tips on involving children in your visits and a welcome list of resources that spans organizations, Web sites, and additional books; this straightforward advice even includes expected response time to Web site inquiries. Instead of an index, you'll find a list of topics, so you can find immediate answers on "ending a conversation" and "when to insist."

One lengthy chapter covers the heartbreakers, such as dealing with refusals to eat or listening to tearful requests to be taken home. Author Claudia Strauss acknowledges the difficulty of these situations honestly, while at the same time providing simple words that can help diffuse the issues and open the path for joyful visits that benefit everyone involved. --Jill Lightner

Customer Reviews:

Excellent!.......2007-09-07

Such a positive approach. This book really helped me connect with my mother who has alzheimer's and is in a nursing home. I felt that I was making her more comfortable with our visits and not as confused. Thank you, Claudia J. Strauss for your helpful suggestions.

Not relevant enough.......2007-04-14

This book is basically a "feel good" book and doesn't address the grittiness of dementia/alzheimer disease. There are many of us whose loved ones/friends have become extremely hateful and vitriolic, and this book does nothing to give us some glimmer of light at the end of the tunnel. "The 36-hour Day" is a much better and more comprehensive book.

Too much focus on what NOT to do.......2007-01-03

There are not a lot of books out there that even attempt to help people learn how to talk to a person with Alzheimers. I was very happy to find this book at all since I have just begun working at a day center program for persons with Alzheimers and dementia. This book is full of practical advice on the many ways and reasons we talk to persons with dementia and in that way, the book is extremely valuable. However, the overall emphasis of the examples is on what NOT to do, which is very frustrating. One of the reasons people seek out such a book in the first place is that they have already had some communicative breakdown and they are looking for ways to fix it, not more lists of what not to do. We already know what doesn't work. We want to know what does work. That said, please know that there is a wonderful small section with a parallel list of Don'ts and Do's near the end of the book. That section is worth looking at.

A how to "Talking to Alzheimer"guide.......2006-08-06

I first saw this book in the waiting room of a Dr. my mother was meeting with. I didn't have too much time to get into it then so I purchased it later and what a tremendous book, so easy to read and it had situations I am currenlty dealing with and the appropriate responses. I took it to my support group for caregivers and shared it with the group, some were going to purchase the next day. My thanks to Claudia Strauss for writing it!!

One of my "Must" readings for caregivers.......2006-04-16

Dementia a disease that knows no boundaries. It is blind to the categories in which we usually place our fellow human beings. It can occur at the age of 55 or 85. It can happen to Blacks, Whites, Hispanics, Asians, Jews, Christians, Muslims, males and females, rich and poor. It has not spared ex-presidents. I speak from personal experience. Dementia did not spare my mother whose 15 year journey into the opaque fog of this disease is told in my own recently published book. Tears are shed by husbands and wives, sons and daughters, brothers and sisters-in fact anyone responsible for the care of a loved one with dementia. TALKING TO ALZHEIMER'S will help all such caregivers to cope.

Robert Tell, Author of "DEMENTIA DIARY, A Care Giver's Journal"

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